Showing posts with label Americans with Disabilities. Show all posts
Showing posts with label Americans with Disabilities. Show all posts

Sunday, May 22, 2016

Another Government Agency in Distress

From: The American Legion Magazine, June 2106

More than medicine
By Joseph J. Frank


Until the land mine went off, it was a pretty routine assignment. I was directing a truck loaded with sandbags to a bridge site at Tam Ky, in what was then South Vietnam. The road from base camp to the river had been swept for mines, but the truck swerved left, off the main path. There was an explosion, but I didn’t hear it. The next thing I remember is lying flat on the ground, sensing my legs were still in the air. A medic was immediately upon me, pushing painkillers through my skin, to go along with numbing shock. Strange thoughts entered my mind. Someone was giving me last rites. Was I dead? No, I did not think I was dead. Then I heard the beat of Huey blades in the tropical air. 

I will never forget the date. It was Jan. 14, 1968, 48 years ago – the height of the Vietnam War. I had begun that day as a strapping young soldier in the Army’s 39th Engineer Battalion (Combat). It was the last morning I would rise and feel my feet hit the ground beneath me. 

I came back to the United States paralyzed from the chest down, a T4-5 paraplegic. The hardest part of a spinal injury, for many of us, is psychologically accepting the reality that no matter how hard we try, we’re never going to get up and walk again. The human brain is not easily convinced of this and continues, almost involuntarily, to attempt to solve a problem for which there are not yet any medical answers. 

For me, this new and different life began at the Hines VA Spinal Cord Center in Chicago. There, I had doctors and counselors who understood not only my condition but my context. Healthy soldier one day and paralyzed veteran the next, I had suddenly returned to the United States to begin the yearlong rehabilitation from an injury in a war that most Americans misunderstood or hated. Some would look at me and see an illustration of political viewpoints I did not necessarily share with them. 

In a ward with 32 other paralyzed veterans I learned to get dressed in the morning, take care of myself, operate my wheelchair, keep my upper-body muscles strong and drive a vehicle without the use of lower limbs. I also learned what it means to have health-care services specific to my status as a veteran, delivered in the company of others who have served in uniform. As a young veteran in need, I realized that VA care is a cherished benefit reserved only for those of us who pledged our lives to defend our nation. It’s something we get in return for what we have given.

As the VA privatization movement rattles through Washington heading into the fall elections, I think back to that year I spent at Hines. After I got used to my wheelchair, I started helping other paralyzed veterans in the ward as some had done for me when I arrived. I made several discoveries that first year of major adjustment, and those discoveries have guided my career as a champion for veterans and people with disabilities alike. 

I discovered, for instance, that veterans need caregivers who understand the post-military journey, whether we are looking for relief from post-traumatic stress disorder, trying to figure out a new prosthesis, hunting for a job, filing a claim, buying a house or getting checked for hepatitis C. As an American Legion member, and later as a counselor and service officer in the St. Louis VA system, I also discovered why it’s important to be both a constructive critic and a tireless advocate of VA health care. We address the system honestly and demand improvements when needed because VA health care belongs to us, the veterans who use it. Too often today, I find that the biggest supporters of VA privatization are not VA patients at all. Many are not even veterans.

Too often, veterans’ criticism of VA has been misinterpreted as condemnation. And our calls for change and reform within the system have been erroneously translated into a perceived demand for its transfer to the private sector. The American Legion has supported the 2014 Choice Act and its provisions only as a temporary measure for veterans whose VA facilities are unreasonably distant or overbooked. The Legion opposes permanent use of non-VA providers, as well as expansion of vouchered care to the private sector, for a number of relevant economic reasons, including lower average cost per patient – but there’s much more to it than that.
More importantly, VA consistently outperforms other providers in terms of patient satisfaction and quality. That was certainly the case for me in VA’s spinal cord program, which is superior. A VA health-care provider is far more likely to know where to turn for answers on claims applications, disability ratings adjustments, or college and career help. VA health care is more than medicine. It’s a network of people – providers and patients alike – who care about veterans in ways non-VA medical practitioners can’t be expected to understand, let alone provide. Why would we ever want to take this benefit – a health-care system that understands the context of our lives as veterans and can help us in multiple ways – and hand it off to private providers whose quality probably ranks lower and cannot fully understand our needs and the services available to meet them? Outsourcing is only preferable when veterans have no other choice, such as those who live in rural areas distant from VA facilities.

I was honored to serve on the presidential committee of people with disabilities that brought into existence the Americans with Disabilities Act (ADA), which improved the lives of millions and continues to do so. Not only did the ADA open doors and make upper floors accessible to people who use wheelchairs, it changed perceptions. I remember vividly that, in 1968, children were often frightened by wheelchairs. Today my grandkids want to ride on mine. My work on the ADA, and its success, proved that revolutionary positive changes can be accomplished even when dealing with the federal government, and greater understanding can be achieved on a bigger scale about people outside the average U.S. demographic, like those of us who use wheelchairs and military veterans.

The year I was elected national commander of The American Legion, Congress passed the Veterans Health Care Eligibility Reform Act of 1996, which opened up VA to all who honorably served our nation. Priority groups were established to ensure that those with the greatest needs and service-connected conditions would move to the front of the line should demand exceed capacity. As demand grew and capacity did not, today’s access problem understandably arose. The movement to expand privatization because we haven’t solved the access-demand problem seems to suggest that veterans don’t deserve the quality care we fought to achieve in our VA system. Now that quality is great, we will need to go someplace else. That’s pretty hard to accept, regardless of your service-connected disability rating.

A couple of years ago, I went back to the Hines VA center, where this journey began. This time, I was on a completely different mission, conducting an American Legion System Worth Saving site visit. The chief of the center met our group there, and he brought with him a yellowed file from 1968. It was mine. In it was a written chronicle from my arrival as a frightened, young and newly discharged soldier whose future was irreversibly changed, through my wheelchair training, weightlifting, psychological counseling and driving lessons. I was carried into that VA facility and I drove away from it, back to my family in Missouri where I would start a new life. I have been independent, happy and productive ever since, with the benefit of great family support. I knew then, from my experience at Hines, that what lay ahead for me wasn’t always going to be easy, but there are ways to solve almost any problem.  

Joseph J. Frank served as national commander of The American Legion from 1996 to 1997. He also worked as a benefits officer for Paralyzed Veterans of America and as a peer counselor in the Robert Woolsey Spinal Cord Center, attached to the St. Louis VA Health Care System. He often speaks at schools and veterans events about his career in advocacy.



Friday, January 17, 2014

Generation X Is Sick of Your Bullshit

You're going to read this, and you're going to say, how is this about tech? I'm gonna head you off at that pass: This is a message from Internet, the generation that became the voice that set the tone for everything you love about the Net. And it's pissed. –Editor





"Earlier generations have weathered recessions, of course; this stall we're in has the look of something nastier. Social Security and Medicare are going to be diminished, at best. Hours worked are up even as hiring staggers along: Blood from a stone looks to be the normal order of things "going forward," to borrow the business-speak. Economists are warning that even when the economy recuperates, full employment will be lower and growth will be slower-a sad little rhyme that adds up to something decidedly ­unpoetic. A majority of Americans say, for the first time ever, that this generation will not be better off than its parents." New York Magazine
Generation X is sick of your bullshit.

The first generation to do worse than its parents? Please. Been there. Generation X was told that so many times that it can't even read those words without hearing Winona Ryder's voice in its heads. Or maybe it's Ethan Hawke's. Possibly Bridget Fonda's. Generation X is getting older, and can't remember those movies so well anymore. In retrospect, maybe they weren't very good to begin with.

But Generation X is tired of your sense of entitlement. Generation X also graduated during a recession. It had even shittier jobs, and actually had to pay for its own music. (At least, when music mattered most to it.) Generation X is used to being fucked over. It lost its meager savings in the dot-com bust. Then came George Bush, and 9/11, and the wars in Iraq and Afghanistan. Generation X bore the brunt of all that. And then came the housing crisis.
Generation X wasn't surprised. Generation X kind of expected it.

Generation X is a journeyman. It didn't invent hip hop, or punk rock, or even electronica (it's pretty sure those dudes in Kraftwerk are boomers) but it perfected all of them, and made them its own. It didn't invent the Web, but it largely built the damn thing. Generation X gave you Google and Twitter and blogging; Run DMC and Radiohead and Nirvana and Notorious B.I.G. Not that it gets any credit.

But that's okay. Generation X is used to being ignored, stuffed between two much larger, much more vocal, demographics. But whatever! Generation X is self-sufficient. It was a latchkey child. Its parents were too busy fulfilling their own personal ambitions to notice any of its trophies-which were admittedly few and far between because they were only awarded for victories, not participation.

In fairness, Generation X could use a better spokesperson. Barack Obama is just a little too senior to count among its own, and it has debts older than Mark Zuckerberg. Generation X hasn't had a real voice since Kurt Cobain blew his brains out, Tupac was murdered, Jeff Mangum went crazy, David Foster Wallace hung himself, Jeff Buckley drowned, River Phoenix overdosed, Elliott Smith stabbed himself (twice) in the heart, Axl got fat.

Generation X is beyond all that bullshit now. It quit smoking and doing coke a long time ago. It has blood pressure issues and is heavier than it would like to be. It might still take some ecstasy, if it knew where to get some. But probably not. Generation X has to be up really early tomorrow morning.

Generation X is tired.

It's a parent now, and there's always so damn much to do. Generation X wishes it had better health insurance and a deeper savings account. It wonders where its 30s went. It wonders if it still has time to catch up.

Right now, Generation X just wants a beer and to be left alone. It just wants to sit here quietly and think for a minute. Can you just do that, okay? It knows that you are so very special and so very numerous, but can you just leave it alone? Just for a little bit? Just long enough to sneak one last fucking cigarette? No?

Whatever. It's cool.

Generation X is used to disappointments. Generation X knows you didn't even read the whole thing. It doesn't want or expect your re-blogs; it picked the wrong platform.
Generation X should have posted this to LiveJournal.

Republished from Mat Honan's tumblr.

Thursday, November 21, 2013

The International Disabilities Treaty

A lofty and noble cause, surely, but I have to ask, “What’s this going to cost us?” If you read between the lines just a little bit, you start hearing the alarm bells going off and the red flags popping up. Is this really something our Government needs to be doing right now? The best way to help disabled people the World over is to stop producing them!

21 November 2013





FOR IMMEDIATE RELEASE 
November 21, 2013

Statement from Secretary Shinseki on the Disabilities Treaty

WASHINGTON -- Ratification of the Disabilities Treaty is important to our Nation's 5.5 million disabled Veterans.





Ratification of the Disabilities Treaty is not about changing America.  It’s about helping the rest of the world raise their accessibility standards to the gold standard the United States has set through our ADA.  Ratification will help reinforce America’s global leadership role and reputation, putting us in the strongest position to advance disability rights worldwide.

By joining the treaty, we will be helping the 5.5 million Veterans with disabilities and the 50 million Americans with disabilities study and work with dignity and pursue greater opportunity abroad with the same access they enjoy at home.

I served for roughly 10 years in Europe as a disabled Soldier following my tours in Vietnam.  During that time, I had to learn to walk and run again.  I had to convince the Army that I could continue to serve, and learn to adjust to a new reality.  I recall the absence of aids for the disabled in many places where I served-ramps, lifts, automatic door openers, among other devices that are commonly available in this country.

Our disabled Veterans and service members have put their trust in our country.  Now, it’s time for our country to put its trust in them.  It’s time to ratify the Disabilities Treaty.
I urge the Senate to approve the Treaty this year.

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